Owen was born on February 7, 2017. He was transported to Cook Childrens' Hospital in Fort Worth on February 8th, 2017 because x-rays showed Owen had a blockage in his bowels. Owen had abdominal surgery for meconium ileus on February 9th. We spent two and a half weeks in the NICU helping Owen recover from surgery. It was during our stay in the NICU that the results of the newborn screen were returned, and Owen was officially diagnosed with Cystic Fibrosis.
The diagnosis came as an enormous shock. How could our perfect baby boy have CF? The pregnancy was perfect. The labor and delivery was perfect. Richard and Keenan had no idea that they were CF carriers. After the shock wore off, Richard and Keenan decided the best thing to do was be positive, research as much as we could, and join the fight against CF. We are committed and determined to make CF=CURE FOUND.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.