Owen was born on February 7, 2017. He was transported to Cook Childrens' Hospital in Fort Worth on February 8th, 2017 because x-rays showed Owen had a blockage in his bowels. Owen had abdominal surgery for meconium ileus on February 9th. We spent two and a half weeks in the NICU helping Owen recover from surgery. It was during our stay in the NICU that the results of the newborn screen were returned, and Owen was officially diagnosed with Cystic Fibrosis.
The diagnosis came as an enormous shock. How could our perfect baby boy have CF? The pregnancy was perfect. The labor and delivery was perfect. Richard and Keenan had no idea that they were CF carriers. After the shock wore off, Richard and Keenan decided the best thing to do was be positive, research as much as we could, and join the fight against CF. We are committed and determined to make CF=CURE FOUND.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.