Hello I wanted to let everyone know the reason behind wanting to walk for cystic fibrosis. My daughter Natalia was diagnosed with CF in her new born screening. We knew she could potentially have this disease while I was still pregnant with her. At only 20 weeks pregnant the doctors discovered that I was a carrier of this gene. I was informed that I was still within the time frame to terminate the pregnancy like I had that risk. There was no way in this world I would terminate the life of my own baby girl. No matter how she arrived we where going to love her the same. Natalia will turn 5 and has been fighting since day 1. We have had long hospital stays and operations but we will not let cf get the best of her. She's a blessing and we love her. She's a sweet little girl but can have a little diva attitude. She has a smile on everyday that seems to keep us in a good mood. She has taught me how to be strong and not let life knock you down. Help us raise awareness for cystic fibrosis, donate and join our team and walk with us May 19,2019. Thank you.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.