Hello I wanted to let everyone know the reason behind wanting to walk for cystic fibrosis. My daughter Natalia was diagnosed with CF in her new born screening. We knew she could potentially have this disease while I was still pregnant with her. At only 20 weeks pregnant the doctors discovered that I was a carrier of this gene. I was informed that I was still within the time frame to terminate the pregnancy like I had that risk. There was no way in this world I would terminate the life of my own baby girl. No matter how she arrived we where going to love her the same. Natalia will turn 5 and has been fighting since day 1. We have had long hospital stays and operations but we will not let cf get the best of her. She's a blessing and we love her. She's a sweet little girl but can have a little diva attitude. She has a smile on everyday that seems to keep us in a good mood. She has taught me how to be strong and not let life knock you down. Help us raise awareness for cystic fibrosis, donate and join our team and walk with us May 19,2019. Thank you.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.