Beckett Preston Salyer was born on March 11th, 2016 in Fort Worth, Texas at Baylor Scott and White Hospital. On this particular day, the weather was anything but pleasant. The 20-minute drive to the hospital, in the rain at 5 in the morning, felt like we were driving on a treadmill but we eventually made it to the hospital safe and sound. After peeling my fingers from the steering wheel, we went and checked in. Once we completed the long, daunting task of checking in, it was time to enter the room where we would finally meet the baby boy that had been planning his escape for almost 9 months. After being in labor for close to 8 hours, his mother gave birth to Beckett at 7:00pm without any complications. He weighed in at a whopping 5.14 pounds and was 19 inches long. The original due date was April 1st or April fool’s day but little did we know his prank was to come out about 3 weeks early.
For the first 2 months, everything went as smooth as first time parents could hope for with a newborn. He didn’t cry very often, he didn’t mind riding in his car seat, he didn’t have any problem latching on or any of the horror stories that I had heard from other parents. When we finally started getting into a routine and settling into parenthood, we received a call from the hospital saying that there is a good chance that he may have Cystic Fibrosis and that he would need to have a sweat test done to make sure their screening was correct. The news was incomprehensible at the time, since neither of our families had any history of CF whatsoever. We refused to believe it for a while, or thought that maybe it was a faulty test or a mix up of some sort, hopefully. Then, the genetic test came back, confirming that he in fact had 2 different genetic mutations, which made the news undeniable. Once it settled in, that It was in fact real and that it was something that would be a part of our lives forever, came all the negative feelings, such as guilt, helplessness and the “why us” phase. But once we started educating ourselves and reading more into CF and all the medical advances that have come about over the last 30 years, we started to lose those negative emotions and replace them with positive ones. What really changed our way of looking at CF was when we read other people’s blogs or firsthand accounts of people that either had CF or was directly affected by someone who had CF. Almost every blog I read was extremely optimistic and high spirited which allowed us to become more and more optimistic and hopeful for our family’s future and the quality of life that we worried about missing out on. Having a child with CF opens the door to a whole new way of living and thinking. It opens your eyes to how many families and friends are directly affected by CF and how extraordinary these people’s stories are. It was amazing to read how positive and how helpful these people were after years of dealing with CF, and how certain things become routine without effecting the overall quality of their lives.
Beckett has transformed our lives in a variety of ways that we are extremely grateful for and that we wouldn’t have ever experienced any other way if it weren’t for him. He continues to make us better people every day while we try to do everything we can to give him the best life we possibly can. After a year of being a part of the CF world, every day is still a learning process with uncertainty lingering in the background, but with all the different medical advances and events being held all over the world, the future looks bright for CF. There are several new treatments and medications that improve a variety of symptoms in CF patients, but there is still no cure for this genetic disorder, yet. Great Strides has done amazing things for the CF community and this will be our first year to take part in this event. We are excited to not just be walking for Beckett, but we are excited to be a part of trying to find a cure for all CF patients. If you would like to donate to our team, the entire CF community would appreciate it tremendously and if you would like to walk along side of us just let us know and we will add you to the team!! Even if you are unable to donate monetarily, if you could either share this event on social media or at your job or wherever it may be, we appreciate anything and everything that will bring awareness to Cystic Fibrosis. Thank you for taking the time to read our story and we hope to see you out there making Great Strides for cystic fibrosis.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.