We will "walk" on September 13th. This is a virtual event due to the pandemic. Please join us in spirit!
Jared's Journey was formed in 2004, shortly after Jared was diagnosed with Cystic Fibrosis at age 3. Today he keeps himself busy in a number of ways- he is a student manager for his college basketball team, attends classes, and he spends too much time on electronic devices! He is still a superfan of Texas Rangers baseball. He may look healthy on the outside, but on the inside his body is fighting a war against this progressive and harsh disease. He has endured multiple hospitalizations and medical procedures these past 16 years. Each and every day he has to work to fight this disease with multiple respiratory therapies, and he takes numerous pills to aid his digestive system, liver, and lungs. Despite his efforts to slow progression, his lung function continues to decline. We cannot stop fighting! Part of our fight involves raising funds and awareness. That is why we walk! These efforts have lead to REAL RESULTS that have directly impacted Jared's fight. TriKafta was recently approved by the FDA and the results have been remarkable for Jared and others who have CF. We are thrilled with these results BUT the fight has not been won.
CF complications eventually lead to death - Hundreds of precious lives are lost each year. There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for Jared, but we also walk for them. Will you join us? Will you sponser us by making a donation?
Funds raised benefit research and therapies that aim to control, manage, and hopefully cure this disease. There are numerous research programs underway that will benefit from this funding. Please visit cff.org for more information on these programs (those in planning, process and those that have already started making a difference). Check them out on charitynavigator.org. They have excellent ratings year after year for utilizing their money responsibly.
We must find a cure and we are getting closer all the time.
If you would like to participate in this fight, please support me in Great Strides by making an on-line donation by clicking the "Donate" button at the top of this page.
Or you may send a check to "Cystic Fibrosis Foundation", memo "Jared's Journey" to:
Drex Rutledge, 12604 Marl Way, Denton, TX 76207.
Thank you for your support, encouragement, and donation.
Drex and Jolene Rutledge