As you can imagine, the fight for a cure for CF continues amidst the pandemic.
CF patients are in the high risk group, making the spread of a dangerous respiratry virus an especially heightenend cocnern for families like ours. However, with the global threat to the health and livelihood that this virus presents, we have decided to take a low-key approach to fundraising for cystic fibriosis research this year.
Even still, some friends and family members have asked how they can support the cause. So, I am posting our page with gratitude for those who can contribute this year and understanding that many may not be able to do so.
If you are able and so inclined, we would greatly appreicate your support for the funding of vital reasearch to treat the seriously debilitating and life threatining disease cystic fibrosis. Trikafta, the newest wonder drug on the market for CF, promises to benefit 90% of CF patients. Cystic Fibrosis Foundation has been at the forefront of the incredible research that led to these achievements. Yet, the fight continues.
Unfortunately, 10% of CF patients have rare and nonsense mutations that do NOT benefit from these amazing new drugs. Turner is among that final 10%. Care about rare, please.
Until it's done!
Family and Friends of Turner Ryan DeMott