Andra Conner

Results from Breelyn's two week newborn screening showed she had the genes for Cystic Fibrosis. I knew of Cystic Fibrosis, but until 10 years ago, I didn't really KNOW CF.  We've learned a lot the past 10 years.  We immediately started educating ourselves and making sure Breelyn was getting all the medical attention and care she needed to thrive.  And, thanks to your support, donations, and prayers she is a vivacious 10 year old.

In October of 2018 Breelyn was able to start a new drug, Orkambi, that treats the underlying cause of CF.  In 2021, the latest and greatest became available for CFer's Breelyn's age and with her mutations. Trikafta is not a cure but it will extend her life and give her a greater quality of life!  Your donations have made such drugs available from the research being done by the Cystic Fibrosis Foundation.  Before breakfast each day Breelyn throws back 6 pills (all at once) and has had a breathing treatment. Along with breathing treatments and CPT at least three times a day, she takes up to an additional 14 enzymes capsules a day, an inhaled medication, and another Trikafta tablet.  That's a lot of treatments and medication for Bitty (nickname for Breelyn) and the Cole family.  It does take the entire family.  

We are thankful for all the research being done to help those with CF.  This research is funded by you.  CF does not receive government funding.  All of these great strides towards a cure for CF is because of your support!  

As I type this out I noticed the common thread is "you" and "your".  Without YOU we wouldn't have the research and without research we wouldn't have the hope for a cure!  Thank you!  Thank you in joining us in the fight for a cure for Breelyn!

Until it's done!!