As some of you may or may not know, our son Mason was diagnosed with Cystic Fibrosis in 2014. Since the day he came into our lives we knew that he was something special. He has opened our eyes to how precious life can be and how to not take anything for granted, even something as simple as breathing. He's currently an energetic six year old that loves going to school and playing with his friends, but unlike normal six year olds he has to take 26 pills a day and sit through breathing treatments twice a day to keep his lungs clear. He takes them like a champ, although I'm pretty sure he'd rather be at the park riding his bike.
There are approximately 30,000 other Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers. We walk for my son and all the others affected by this disease. 2020 was obviously hard on everyone, especially charitable organizations that rely on fundraising. Our biggest fundraiser of the year, Great Strides, was cancelled but this year we're gathering together for a car parade!
Real progress has been made in the search for a cure. Although there still is no cure for this genetic disease, the CF Foundation is making great strides and there are very promising drugs in trials. If would like to learn more about CF, the best source for the most current information is at http://www.cff.org. Please support us by making a donation to our Great Strides fundraising campaign today.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.