We hope you and your families are well amidst the continued struggles this last year has brought us. We were saddened to have to cancel last year’s tournament. While open for golf, Sherrill Park will not allow post tournament gatherings due to local government restrictions. For that reason, we have chosen to postpone the 2021 tournament to a later date. Hopefully, we can get together this fall for an outing.
Most charitable organizations are struggling due to the cancelations of such events. Therefore, we hope you will consider a donation to the Cystic Fibrosis Foundation via Henry’s Great Strides page in the link below. With your help, we have raised over $430,000 through this golf outing over the years. We hope to continue this year with an email and letter writing campaign.
We are thrilled to report that Henry is doing great! He has been on Trikafta for about a year. His lung function has improved from 68% when he started to well into the 90% range! He no longer takes naps during the day and is very active in sports. He is gaining weight and getting taller. And, he is growing into a fine young man. We are optimistic that these amazing results will continue.
Trikafta was created through a partnership between Vertex Pharmaceuticals and the Cystic Fibrosis Foundation, proving that the grassroots fundraising along-side pharmaceutical companies does indeed work. Your contributions are achieving wonderful results and directly impacting the day to day life of the boy who inspired this event (and countless others).
We are extremely grateful for your past support of this event and hope you will consider making a donation at this time. We celebrate the significant victory of Trikafta and strive to further the research and development of other life enhancing therapies. I will keep you updated throughout the summer on possibly getting together for a fall tournament.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.