I have spent nearly 7 years working for the CF Foundation; an organization I care deeply for. No, I dont have a direct connection to this disease but after 7 years, I have had the priviledge of calling this community a second family.
The story of cystic fibrosis is the most significant story in modern medicine. The collaboration among the FDA, a non-profit, big pharma and most importantly, people with CF and their families has resulted in the creation of drugs that are extending the lives of people with CF by decades.
The CF Foundation is the most effective organization dedicated to curing cystic fibrosis and helping people with CF navigate the complexities of their disease. The Foundation has funded EVERY drug available today for the treatment of both the symptoms and the underlying genetic defect that causes CF. As a result of over 50 years of funding R&D projects, more than 50% of people with cystic fibrosis are now 18 years of age or older. But there is still no cure.
I strongly believe that if each of us were to choose a cause, dedicate our time, talent or treasure, that we would see a tremendous impact on those who need it the most. Cystic fibrosis my cause.
Every donation is an investment. An investment in the lives of 30,000 Americans battling this disease. This Foundation is changing the landscape of personalized medicine and investing in gene editing so that one day, people with CF will walk into a doctor's office and walk out free of cystic fibrosis.
Please support me.
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.