Hi! Sebastian The Brave would like to invite you to join his team.
Sebastian was born with Cystic Fibrosis (CF), a life-threatening condition known to affect the lungs and digestive system. Because of CF, Sebastian suffers from pancreatic insufficiency and liver disease. He takes about 25-30 pills a day (that's just to eat and drink his medical formula) and lots of other medications that help keep him healthy and looking amazing. Fighting this disease is not just about Sebastian, is about his mom, his dad, his brothers, grandparents, aunts, uncles, cousins and also his friends. Everyone has supported Sebastian since day one, and continues to do so with love, compassion, understanding, courage and prayer... lots of prayer. This illness is devastating and exhausting for Sebastian. Though he is only a child, he deals with a lot on a daily basis. Medication after medication, treatments, nurse visits, check-ups, hospitalizations, blood work, test, medical procedures, weight problems, liver issues.... and well, the list goes on. If there is one thing about CF that makes this battle worth fighting, it's Sebastian's precious smile. The joy he delivers when he shares his smile with the world, is what pushes those who love him to fight so that one day CF can stand for Cure Found.
Will you WALK for SEBASTIAN THE BRAVE?
By walking today, you are helping add tomorrows to the lives of people living with cystic fibrosis. You can join Team "Sebastian The Brave" or make a donation to Sebastian's Great Strides fundraiser campaign.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support Sebastian!
Help him reach his fundraising goal by donating to his Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.