Once again, we're rallying the Flying Banners to raise awareness and support cystic fibrosis research. After all these years, this is still Banner's favorite day of the year. Thank you to all of you who have joined us year after year. You have sown so many seeds of joy and love.
For those wanting to participate in the walk and receive a team tshirt, I will need your donation and sizes by THIS FRIDAY, May 6th. When you walk and donate $25 per person, you'll get our annual team tshirt. (Non-walker donations can be made at any time.)
Dealing with cystic fibrosis and all that it entails has been a part of Banner’s entire life. At this point, age has made him much more aware of its seriousness. He has heard the stories of lung transplants, CF-related deaths, and has considered his own life expectancy. His body has adjusted to things, both physical and mental, that I’m certain would take down most people. He is all too familiar with frequent sickness and the burdensome and often tiring regimen that is required on a daily basis. Even committing to the daily requirements does not guarantee “good health,” and he is learning to be responsible for knowing his own body, communicating with doctors, and taking care of himself. The consequences of apathy are significant, and we pray he grows into adulthood with a strong, patient, and diligent attitude toward his health.
There is absolutely no denying the grit and mental fortitude that results from walking a hard road. We hope to seize every opportunity to let the Lord use our journey to bring about His goodness “because we know that suffering produces perseverance; perseverance, character; and character, hope. And, hope does not disappoint.” (Romans 5:3-5)
Some time soon - hopefully in the next year - we expect the FDA to release a brand new CFTR modulator therapy drug. Because of his genetics, Banner has not been able to take any previous medications in this category. So, for the first time ever, Banner will be able to take a medication that is intended to restore function to one of his defective CFTR proteins! When that protein can function, the mucus in the body can be rehydrated and help relieve symptoms caused by cystic fibrosis. Trials are showing promising results, and we hope for increased lung function, decreased risk of infection, and reduced inflammation. This is a big milestone in CF therapy!
In his own words regarding this medicine, Banner hopes for “a better quality life” and for his body “to be able to do things that it hasn’t ever been able to do.” Even though this exciting medication only affects one of his mutations, we are anxiously awaiting its benefits.
Because of your support of the Cystic Fibrosis Foundation, groundbreaking medications are becoming available to patients. When Banner was diagnosed fifteen years ago, we hoped and prayed that a cure would be discovered early in his life. We are still holding on to hope for that cure. We praise God for all that He is still going to do.
Over and over again, we say thank you for walking the road with us. And, thank you could never be enough.
One day, there will be a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.