I have spent nearly 7 years working for the CF Foundation; an organization I care deeply for. No, I dont have a direct connection to this disease but after 7 years, I have had the priviledge of calling this community a second family.
The story of cystic fibrosis is the most significant story in modern medicine. The collaboration among the FDA, a non-profit, big pharma and most importantly, people with CF and their families has resulted in the creation of drugs that are extending the lives of people with CF by decades.
The CF Foundation is the most effective organization dedicated to curing cystic fibrosis and helping people with CF navigate the complexities of their disease. The Foundation has funded EVERY drug available today for the treatment of both the symptoms and the underlying genetic defect that causes CF. As a result of over 50 years of funding R&D projects, more than 50% of people with cystic fibrosis are now 18 years of age or older. But there is still no cure.
I strongly believe that if each of us were to choose a cause, dedicate our time, talent or treasure, that we would see a tremendous impact on those who need it the most. Cystic fibrosis my cause.
Every donation is an investment. An investment in the lives of 30,000 Americans battling this disease. This Foundation is changing the landscape of personalized medicine and investing in gene editing so that one day, people with CF will walk into a doctor's office and walk out free of cystic fibrosis.
Please support me.
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.