Hey everyone! I'm Alex and I was diagnosed with Cystic Fibrosis at birth! I have been involved in Great Strides for 10 years and this year I am lucky enough to be your Great Strides Ambassador! For those of you who don't know what CF is: it is a progressive genetic disease that causes a thick buildup of mucus in the lungs, pancreas and other organs! This causes serious breathing and digestive complications.
More than 30,000 people in the United States are living with this disease. Although the severity of each individual with CF varies the treatments are the same and just altered to a patient’s specific needs – this is where the help of your donations help tremendously!
In November 2019 I started a new FDA approved medicine called Trikafta – this medication is for everyone who has one copy of the DF508 which is 90% of the CF population but there is still that 10% we need a drug for, that’s why we keep fighting and raising awareness! My life has changed dramatically since taking Trikafta, I honestly didn’t know three small pills would have such an amazing impact on my life! My lung function is the best it’s been in years, I hardly cough anymore, and the biggest thing is I was able to go back to work full-time Although this medication has been life-changing it is not a cure and we still have so much work to do!
Your donations are making such a great impact on the CF community and we are so excited to see what else the future holds for us!
Please support me!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.