Wow has this been a year?
I have had so many friends say something so similar to me this year along the lines of, "it has been such a hard year, but I have nothing to complain about because XYZ has it so much worse." I have tried my best to respond to this comment EVERY SINGLE TIME I have heard it. "Just because someone could be going through something you percieve and interpret to be "worse" does not make your "bad" invalid."
This is something I have grown up understanding. This year has been hard for everyone. Whether someone was lost to this terrible pandemic, someone was confused by the political climate surrounding our country, someone was fighting an invisible illness those around them were unaware about - everyone has had something this year.
I want to make it clear before I even begin my campaign for my passion that I SEE YOU. I HEAR YOU. Just because someone else is walking through a different struggle, that does not make your struggle any "less than".
Non profits have SUFFERED this year - hard. I have wondered how I can sit here and ask for YOUR money when YOU yourself have also had a hard/difficult year. Then, I hear myself taking my own advice. Everyone has learned struggle this year, but it does not make my struggle any less valid.
I started a new drug in November of 2019 that was supposed to change my life. Let me tell you, it did. My base lung function is in a range that isn't life or death scary when I have a "regular" exacerbation. I do not worry when I go into the hosipital that I may not come out. But let me repeat that. WHEN I GO IN TO THE HOSPITAL, I do not worry that I will not come OUT. I have come to know that I will be okay - it just never ends. As of April 15, I have been hospitalized for 31 days of 2021. THIRTY ONE yall. That is 31 days I could have been spending strengthening my family. That is 31 days I could have spent finding new hobbies to help those around me in this terrible time. That is 31 days I could have done anything besides sit in a hospital bed waiting for my body to fight this incredibly persistent demon. I do it - and in my opionion, I do it damn well. BUT WE NEED A CURE. The money being donated to the CF Foundation is money we can ACTIVELY WATCH working. 3 years ago, this letter sounded a lot different. I wasn't worried about the future of things most people think about every day. Today, I am worried that I am missing things that will contribute to my future. Again.... WORRIED about my FUTURE. That is new yall - and that is huge. That is ALL CF FOUNDATION DONATIONS. I have done my part in fighting my hardest, but you all have done yours as well - and look where we are.
I try to find the silver lining in everything. If you know me well, you know that. The silver lining of this year is that people are able to relate. People are able to watch some amazingly beautiful progress in a terribly depressing time. CF has given me JUST as much as it has taken.
If you are able, please donate to our fundraiser this year. This year is TWENTY YEARS that Alli's Angels has been fighting for a cure. Try to imagine the last year of prayers that things could go back to normal. Now imagine that for 20 years... we do not even know normal, but I KNOW we can get there.
I love you guys and appreciate you more than you know. Our goal is $20,000 for 20 years. I know we can do it - it is just going to take a little bit of work. Remember, this is progress you can see. Most importantly though, remember, your hurt and hardship is valid - no matter where it comes from.