Celebrating 30 YEARS! (boo yah!)
As I am sitting in the presentation by Dr. Mike Boyle in the CFF annual meeting, he is telling us all about the amazing drugs coming down the pipeline, I just keep thinking, “when?” This year is huge for the CF community, and they say this is the disease to be invested in because we are about to see BIG things. This isn’t my parents hope of one day, or my mission statements of make CF stand for cure found, this is actual drugs in the pipeline that will absolutely change my life - thanks to you. But in order to keep you as on board as possible, I NEED you to understand, this isn’t the end. CF is NOT cured. Most of us have complications that will last way through this new drug, complications with undesireable outcomes. Hope is such a powerful source of my mental and physical fight, but it can also be the scariest. I hope things will be different, and to be honest, I will be pissed if they aren’t, but I am realistic in knowing THIS is the time that we need your donations. When hope soars, people tend to back away! I feel so blessed that hope is here, but please don’t pull away from us now. UNTIL ITS DONE, we will be making strides!