Welcome to Bowen & Brinlee’s Brigade- we are so grateful that you have taken the time to read a bit about us... whether you chose to sign up to fundraise, donate, or send prayers and well wishes- WE APPRECIATE YOU!!!
Bowen and Brinlee are a fierce duo. They have DDF508, the most common gene mutation causing CF. Bowen was diagnosed at 3 weeks old from the new born screening. Brinlee was diagnosed from CVS testing in utero. They are considered pancreatic insufficient, which requires them to take pancreatic enzymes (25-30 per day) to help properly absorb nutrients and digest their food. Bowen has been very excited to have his sister to do his "breathers" with. Every day they nebulize 3 breathing treatments (more if sick), along with 40 minutes spent using their therapy vests. Even with all the extra things they must do to stay healthy, B&B are happy and thriving children.
Somedays it is still difficult to grasp the fact that we have two children with this terrible disease. We have had the privilege of attending many CF events and with each one we are filled with just a bit more HOPE for what their future WILL look like. Especially with game changing medications like Trikafta! Having a child with a life-shortening disease is terrifying but there is truly so much work being done to help change the face of CF.
With help from amazing people like you, The Cystic Fibrosis Foundation is able to fund the research we need to find our CURE! WE ARE SO CLOSE!!!!Please consider making a tax-deductible donation or even better, join our team! You can choose to walk virtually if the 5K is not for you!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for all of them.
Thank you from the bottom of our hearts-Brian, Leesa, Greyson, Bowen & Brinlee