Dear Friends & Family,
As some of you may or may not know, our son Mason was diagnosed with Cystic Fibrosis in 2014. Since the day he came into our lives we knew that he was something special. He has opened our eyes to how precious life can be and how to not take anything for granted, even something as simple as breathing.
When Mason was first born we were told about all of these new drugs coming down the pipeline that would be "game changers" for people with CF. It took five years before the first one was approved for children and we started it immediately. But the one we were told would really help was Trikafta. We waited patiently for another year and he was finally approved for it in July of 2020. Trikafta is a highly effective therapy that treats the underlying cause of CF, compared to some of his daily medicine that just "keeps him healthy". As a result of the CFF's commitment to finding a cure and from generous donations from our friends and family, he has been thriving. His PFTs have gone up 20 to 30 points and his height and weight have continued to trend upwards.
Because of events like Great Strides we are able to continue the CFFs work in finding a cure for Mason and the other 30,000 Americans living with Cystic Fibrosis. After being cancelled in 2020 and then demoted to a car parade in 2021, it's back to an in-person walk on May 21, 2022 and we couldn't be more excited!
Real progress has been made in the search for a cure. Although there still is no cure for this genetic disease, the CF Foundation is making great strides and there are very promising drugs in trials. If would like to learn more about CF, the best source for the most current information is at http://www.cff.org. Please support us by making a donation to our Great Strides fundraising campaign today, and if you're in the Dallas area join Mason's Minions and walk with us to find a cure.
Mike, Suzanna & Mason