It is once again Great Strides season and in-person this year!
As you know, CF has been my passion for a very long time. I was introduced to cystic fibrosis when I was 10 years old. My good friend, Tressa, lost her battle with CF our freshman year of high school. Her life was cut way too short and that has stayed with me to this day. When I started at the CF Foundation in 1998, I met Allison Villalobos. Allison and I have become extremely close over the years and it is still crazy to think that she was only 9 years old when we first met. We started fundraising for Great Strides in 2001 creating the Alli's Angels team. With your support, we have raised more than $335,000 over the past 21 years. We cannot begin to thank you enough for your continued generosity but we are not done yet!
Allison has been struggling with cystic fibrosis her entire life. We were so excited for Allison to start taking Trikafta in 2019. We had high hopes for this life-changing drug but it has not had the impact on Allison that we had thought it would. She continues with frequent hospital stays and her lung function ups and downs. We are extremely happy for the majority of patients that are doing so well on Trikafta but it is not a cure. For those patients not eligible for Trikafta and for those where it is not working, we need a CURE! This is why we continue to fundraise and will not stop until CF Stands for Cure Found!
I would like to ask you to help us add tomorrows for all of those living with CF by making a donation to our Great Strides team. Allison and I have set a goal of $20,000 for the team again this year. Making a donation is easy and secure. Just click the donate button to make a donation that will support our team. Any amount you can donate is greatly appreciated. Your support will help fuel lifesaving CF programs.
To learn more about CF and the CF Foundation, visit www.cff.org.
Thank you for supporting Great Strides! Together, we can make a difference and add tomorrows to the lives of those with CF.
Until It's Done,