Amy Van Vranken

Where has the time gone? It is hard to believe that 25 years ago, on January 5th, I began my career with the Cystic Fibrosis Foundation. It has been an amazing journey so far and the amount of progress that has been made over those 25 years is beyond incredible. My passion to find a cure for CF continues and I will be here UNTIL IT'S DONE! So, could there be a better way to celebrate my work anniversary than by kicking off my Great Strides fundraising? You can help me celebrate by making a donation (possibly $25, $125, $250…I think you can see a theme here) or registering your own team and making a self-donation. 

My CF Story.....

As you may know, CF has been my passion for a very long time. I was introduced to cystic fibrosis when I was 10 years old. My good friend, Tressa, lost her battle with CF our freshman year of high school. Her life was cut way too short and that has stayed with me to this day. When I started at the CF Foundation in 1998, I met Allison Villalobos. Allison and I have become extremely close over the years and it is still crazy to think that she was only 9 years old when we first met. We started fundraising for Great Strides in 2001 creating the Alli's Angels team. With your support, we have raised more than $350,000 over the past 22 years. We cannot begin to thank you enough for your continued generosity but we are not done yet!

Allison has struggled with cystic fibrosis her entire life. In 2019, we were so excited for Allison to start taking Trikafta. We had high expectations for this life-changing drug but it did not have the impact on Allison the way we had hoped. She is still dealing with frequent hospital stays and her lung function ups and downs. In fact, she is spending her first week of 2023 admitted at UT Southwestern. I am so incredibly happy for the majority of patients that are doing so well on Trikafta but it is not a cure. For those patients not eligible for Trikafta and for those it does not help, we need a CURE! This is why we continue to fundraise and will not stop until CF Stands for Cure Found!

I would like to ask you to help us add tomorrows for all of those living with CF by making a donation to our Great Strides team. Allison and I have set a goal of $20,000 for the team again this year. Making a donation is easy and secure. Just click the donate button to make a donation that will support our team. Any amount you can donate is greatly appreciated. Your support will help fuel lifesaving CF programs.

To learn more about CF and the CF Foundation, visit www.cff.org.

Thank you for supporting Great Strides! Together, we can make a difference and add tomorrows to the lives of those with CF.

Until It's Done,
Amy