Hello,
As many of you know. Our daughters, Ceci and Maria have CF. CF is a genetic disease in which one defective gene cause a thick, build up mucus that causes infections in lungs and pancreas.
This girls are fighters and warriors. To stay healthy they do daily treatments and many medicines. They have showed us no matter what, we always need to stay positive and fight with the biggest smile in our face. They are worth fighting for.
As a family, we are participating this year in the Great Stride walk. We want to create awareness of this disease and raise funds so NO ONE IS LEFT BEHIND. The CF Foundation has invested for a one time cure which includes gene editing. One day, patients like our daughters will walk to the doctor's office with CF and walk out free of the disease.
We cannot cross the finish line without your help. Thank you for your donation. It means the world to us.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.