THIS IS OUR PERSONAL FUND RAISING PAGE FOR THE CYSTIC FIBROSIS FOUNDATION. WE RAISE AWARNESS AND FUNDS FOR THE CFF IN HONOR OF OUR FAVOURITE LITTLE FLOWER, VIOLET DIXON, UNDER THE GROUP NAME - ULTRAVIOLET FOR CF!
VIOLET IS AMAZING! - AND IT'S BECAUSE OF FRIENDS AND FAMILY AND SUPPORTERS LIKE YOU WHO MAKE HER FUTURE BRIGHTER AND BRIGHTER AND LONGER AND HEALTHIER!
PLEASE DONATE TODAY!
It's that time of year again! We are raising funds for the ongoing research and development of new drugs and therapies that will help Violet and all of those with CF live longer and healthier lives.
We have a great news to share about Violet. She started a new breakthrough drug last December (2019) called Trikafta.
When she started Trikafta, we saw an immediate change in Violet's overall health and well being.
- She started having more energy
- She stopped coughing
- She was able to walk around the block without needing to stop and rest for air
- She stopped her overnight tube feedings and still maintained and even continued to gain weight
- She got some self confidence back overall
- Her lung functions increased by 20% !!!!
All of this was made possible by the ongoing donations from our loved ones like you who continue to support the CFF and its efforts to keep pushing for solutions that make CF a disease that people will LIVE longer, LIVE healthier.
Our greatest gift is the CFF who make it their mission to keep fighting for new ways to ensure that 100% of those with CF have a treatment that ensure that they ALL have a goodnews story. We are forever indebted to our family and friends like you, who care about Violet, care about CF and care about making a difference in the lives of those who need it most.
If you can, please donate today to the CFF in honor of Violet at the link below. Any amount is appreciated and 90% of every dollar goes straight back in to developing more ways to improve the lives of those who battle CF every day.
With sincere gratitude.
Violet's mom, Rebecca
As a family, along with our friends, we have raised more than $400,000 since Violet was diagnosed with CF when she was 15 months old. -- Now that she's 13 -- She does not want to be anyone's poster child for CF . She wants everyone to see her as an artist, an author, a creator and the insanely wise little human that she is -- These are the things that define who she is. Not her medicines and her treaments and her sickness -- but her WELLNESS and her CREATIVITY and her VITALITY --