Eva is one of approximately 30,000 Americans living with cystic fibrosis. Now 10 years old, she already feels the long lasting effects of damaging lung infections and difficulty digesting food. She takes up to 46 doses of medicine or supplements a day and needs to eat 1.5-2 times the amount of food of a typical 10 year old to help her absorb all that she needs to thrive. Last year was her most difficult year with two hospitalizations for stubborn pneumonia and over two weeks of IV antibiotics at home. She has not been able to go back to 2 breathing treatments/ day so 3 treatments a day is her new "normal." She also made the choice to stay virtual for school. Lots of changes the past year! But despite 2 hours of breathing treatments a day and a very hard year, she is still a bright, energetic, strong & resilient pre-teen! Her laughter is infectious and her smile a gift.
Because of the efforts of the CFF, there is now medication to treat the underlying cause of CF for those with her genetic defect, but this treatment is not without a cost (side effects, medication interactions & financial)! We have learned of so much that scientists are doing combining this drug with others, as well as trying completely different approaches. THE CF FOUNDATION FUNDS MOST OF THIS RESEARCH. There is no federal government funding for CF, so your donation makes all of this possible.
May 15 was supposed to be the Great Strides walk, which is a fun, family-friendly event that raises awareness and support for people with CF and their families - but we are not out of the woods with COVID. So for safety, it's a car parade!! If we don't see you there, please consider making a donation to our team. Our girl needs a better year!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Many thanks!! Love, Susan, Tim, Cal & Eva Attel