Eva is one of approximately 30,000 Americans living with cystic fibrosis. Although only 9 years old, she has already felt the long lasting effects of damaging lung infections and difficulty digesting food. She takes up to 46 doses of medicine or supplements a day and needs to eat 1.5-2 times the amount of food of a typical 9 year old to help her absorb all that she needs to thrive. Despite this plus 1-2 hours of breathing treatments a day, she lives a very full life playing with her friends & the best brother she could ever have, learning at school & church, and enjoying every moment she can. Her laughter is infectious and her smile a gift.
Because of the efforts of the CFF, there is now medication to treat the underlying cause of CF for those with her genetic defect, but this treatment is not without a cost (side effects, medication interactions & and financial)! We have learned of so much that scientists are doing combining this drug with others, as well as trying completely different approaches. THE CF FOUNDATION FUNDS MOST OF THIS RESEARCH. There is no federal government funding for CF, so your donation makes all of this possible.
May 16 is the Great Strides walk, which is a fun, family-friendly event that raises awareness and support for people with CF and their families. Eva is planning to join us this year, and again and again! If you'd like to walk with us, click on "Join us" and we'll see you there!
It is a bittersweet year for us, as it is our first without our Give CF the Boot family music show. Eva was ready to be out of the spotlight for CF, so we are honoring that. But we aren't going to stop raising monies & awareness until CF stands for Cure Found, for all those living with CF.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
All our thanks!
Susan, Tim, Cal & Eva Attel