We hope you and your families are well amidst the continued struggles this last year has brought us. We were saddened to have to cancel last year’s tournament. While open for golf, Sherrill Park will not allow post tournament gatherings due to local government restrictions. For that reason, we have chosen to postpone the 2021 tournament to a later date. Hopefully, we can get together this fall for an outing.
Most charitable organizations are struggling due to the cancelations of such events. Therefore, we hope you will consider a donation to the Cystic Fibrosis Foundation via Henry’s Great Strides page in the link below. With your help, we have raised over $430,000 through this golf outing over the years. We hope to continue this year with an email and letter writing campaign.
We are thrilled to report that Henry is doing great! He has been on Trikafta for about a year. His lung function has improved from 68% when he started to well into the 90% range! He no longer takes naps during the day and is very active in sports. He is gaining weight and getting taller. And, he is growing into a fine young man. We are optimistic that these amazing results will continue.
Trikafta was created through a partnership between Vertex Pharmaceuticals and the Cystic Fibrosis Foundation, proving that the grassroots fundraising along-side pharmaceutical companies does indeed work. Your contributions are achieving wonderful results and directly impacting the day to day life of the boy who inspired this event (and countless others).
We are extremely grateful for your past support of this event and hope you will consider making a donation at this time. We celebrate the significant victory of Trikafta and strive to further the research and development of other life enhancing therapies. I will keep you updated throughout the summer on possibly getting together for a fall tournament.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.