To our disbelief our beautiful son Cru was diagnosed with Cystic Fibrosis when he was just 5 weeks old through his newborn screen and sweat test. This adventure has been full of unknowns and having a child with a life threatening disease is terrifying, but we have already seen that there is truly so much work being done to help change the face of this disease. Especially, through the most recent advancement in medicine with Trikafta! However, that medicine won't help everyone with CF, so we can't stop fighting until a CURE is found!
With help from amazing people like YOU, the Cystic Fibrosis Foundation is able to fund the research we need to find our CURE!
Please consider making a donation or even better, join our team! You can even choose to virtually walk if the 5K is not for you!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.