Holly Perry

My Great Strides Story

Our sweet friend Mason O'Donnell, 9, is on of nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. We are walking in the Great Strides walk for the Cystic Fibrosis Foundation to help raise dollars and awareness towards ending this disease!

From Mason's parents, Mike & Suzanna:

When Mason was first born we were told about all of these new drugs coming down the pipeline that would be "game changers" for people with CF.  It took five years before the first one was approved for children and we started it immediately.  But the one we were told would really help was Trikafta.  We waited patiently for another year and he was finally approved for it in July of 2020.  Trikafta is a highly effective therapy that treats the underlying cause of CF, compared to some of his daily medicine that just "keeps him healthy".  As a result of the CFF's commitment to finding a cure and from generous donations from our friends and family, he has been thriving.  His PFTs have gone up 20 to 30 points and his height and weight have continued to trend upwards. 

You can support Mason by supporting our team!

By supporting our fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. As you can see from Mason's story, the CF Foundation is changing the lives of those living with cystic fibrosis. Please consider joining us and help make medical history and helping other kids and adults like Mason who are living miracles thanks to the work of this amazing foundation. 

With Love,

Holly, Greg, Lyla, Sutton & Hattie