For too long, I've been hiding in the shadows of cystic fibrosis. Maybe it was out of fear to be judged. Maybe it was because I wasn't as sick as other CF patients and didn't see myself as one of "them". Or maybe it was just me trying to convince myself I was healthy and wasn't stuck with this life shortening disease. I'm here now to put that all behind me and be a voice for the CF community. Thanks to my best friend Courtney's efforts to raise money for CF at the Houston Marathon and my encouraging girlfriend Sarah in making me more comfortable than ever to live with CF, I look to turn a new page by becoming an advocate for the awareness of cystic fibrosis. What better way to start off this new chapter than by doing my first ever CF walk. For years, friends and family members have done walks in NJ in honor of me to fight for all the CF patients out there. It's now time for me to step up and do my first walk for them and everyone who has supported me over the years.
If you're not too familiar with Cystic Fibrosis, it is a rare, genetic disease, that has robbed people of tomorrows - progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease. We walk in Great Strides for them.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let's make CF stand for Cure Found!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.