Annabelle was diagnosed with Cystic Fibrosis through California's newborn screening process. As her parents, it was the hardest thing we've ever had to face, but we are so glad that there are organizations like the Cystic Fibrosis Foundation who are committed to finding a cure for our sweet little girl and the other 30,000 people in the U.S. living with CF.
For those of you who don't know, CF is a life-shortening disease that affects the lungs and digestive system. The extra thick, sticky mucus fills the lungs and can cause frequent lung infections, and eventually leads to respiratory failure. The absorption of nutrients is also hindered by the mucus in the digestive tract, so most people with CF need to take pancreatic enzymes every single time they eat to aid in absorption. The average life expectancy for someone with CF is 41 years old and there is no cure...YET.
Great Strides is a great event and awesome opportunity for family and friends to rally together to show our support and help make finding a cure THAT much closer!
The Cystic Fibrosis Foundation has been at the forefront of finding new treatments and therapies that have increased the life expectancy from infancy to 41 years old. For the first time ever, half of all CF patients are adults. That means that people are living longer, fuller, healthier lives and it's all thanks to the generous donations from people like you!
We're asking you to join us in fighting this devastating disease so Annabelle can live to be a great-great-great grandmother and be able to breathe deeply and enjoy her life. Please consider donating today so you can help "add tomorrows" for everyone living with CF! "She is clothed with strength and dignity, and she laughs without fear of the future." -Proverbs 31:25
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.