Declan is three years old!!! Thanks to years of research we have amazing therapies that have kept his lungs clear. I love seeing the shock on our doctor's face everytime he listens to his chest. While amazing these therapies take a lot of time. At least two hours a day Declan has to wear a mask and/or a chest vest. Three if he has a cold or something else that could clog up his lungs. We have recently been able to cut his meals down to a half hour each but we still have to do it 5 times a day. Thats a lot of time for a one year old to be still. Luckily he is a fan of nearly all things Pixar and a couple Off-Pixar movies too.
When he isnt hooked up to his tube or a machine this little man is on the move! He loves exploring the house and the backyard with the dogs. He really loves standing and climbs up anything that would appear to hold his weight. He will also chew on anything he happens to be using for support. Teething is not our friend.
We love watching Declan grow and look forward with anticipation to what he will accomplish next. We are also cautiously optimistic. This year has brought us to the hospital more than once. We hate seeing our little fighter stuggle. That is why we walk. We dream of a day when Declan no longer needs breathing treatments and his food can go down without enzymes or laxatives.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.