My Great Strides Story
Liam was born as a premature baby due to his heart rate decreasing. At birth he needed abdominal surgery because his pancreas were blocked. Spent 2 months in NICU figuring out what can be the cause. After testing we confirmed that Liam was diagnosed with Cystic Fibrosis (CF). An inherited life-threatening disorder that damages the lungs and digestive system. Needing serval medications a day and serval doctor visits. People with CF feel like they are breathing out of a straw, which leads to feeling fatigued even walking a few steps.
Unfortunately neither parent knew what CF ment, and as any new parent would be after hearing a estimated life spam of your child we were devastated. After realizing this is our new “normal” we decided to do what we can to help understand everything our son goes through on a daily basis of his life.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.