Declan is four years old!!! Thanks to years of research we have amazing therapies that have kept his lungs clear. I love seeing the shock on our doctor's face everytime he listens to his chest. While amazing these therapies take a lot of time. At least two hours a day Declan has to wear a mask and/or a chest vest. Three if he has a cold or something else that could clog up his lungs. We have recently been able to cut his meals down to a half hour each but we still have to do it 5 times a day. Thats a lot of time for a one year old to be still. Luckily he is a fan of nearly all things Pixar and a couple Off-Pixar movies too.
When he isnt hooked up to his tube or a machine this little man is on the move! He loves exploring the house and the backyard with the dogs. He really loves standing and climbs up anything that would appear to hold his weight. He will also chew on anything he happens to be using for support. Teething is not our friend.
We love watching Declan grow and look forward with anticipation to what he will accomplish next. We are also cautiously optimistic. This year has brought us to the hospital more than once. We hate seeing our little fighter stuggle. That is why we walk. We dream of a day when Declan no longer needs breathing treatments and his food can go down without enzymes or laxatives.
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