Nearly 40,000 people in the United States have Cystic Fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan.
I was diagnosed with CF when I was 3 months old. Since that time, I have been doing high frequency vest therapies, many nebulized treatments, and taking lots of medicine. Research has come so far because of all your donations. The last few years have been amazing for my health. I’ve started taking Trikafta, which attempts to correct the genetic defect of CF, and allows my lungs to function more normally and my body to help absorb food.
While these recent advancements in medical treatments and medicine have helped me tremendously, there are many CF patients who are unable to utilize this medicine because there are so many different mutations of CF. My family is driven by a dream that one day, every person with CF will have the chance to live a long, healthy life. You can help us reach that goal!
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. The CF Foundation has a vision towards a cure for every person with CF – a life free from the burden of this disease – and I want to make sure that no one gets left behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider donating and help make medical history.