Team Alex was started 14 years ago, after our son Alex was diagnosed with Cystic Fibrosis Great Strides gave me a way to help make a difference in the future of Alex and so many others fighting CF.
Today, I have a very active, life loving 14 year old. Yet sometimes, it's still hard for me to believe and wrap my mind around the fact that my son has a disease that will rob him of many, many things...including life. As "normal" as it is for Alex to get up at 6:00, do his 30 minute vest therapy, 2 inhalers and aerosolized treatment, take 25 pills and do his treatments again every night, I marvel at the fact that he doesn't ever complain or think twice about doing it. It's just part of who he is...
Because of his diligence, many trips to the doctor, countless hours of treatment, meds, and lots of prayers, Alex has had a pretty good year. He has had some rough goes with infection and is taking new meds secondary to liver changes as a result of CF. Fortunately, Alex is doing well and continues to be VERY active. He enjoyed playing baseball, basketball and every activity at school he can talk me into okaying. He loves to play with his friends, cousins and brother, Luke. I thank God every day for the friends and family that help us fit Alex's treatments into his busy days. It can be a lot to juggle, and it makes it so much easier to manage with the help of our loved ones.
Great strides is the Cystic Fibrosis Foundation's biggest fundraising event. We will walk on May 18th to support and raise money for all of those with this disease. Your donation is fully tax deductible. I am proud to say that the CF foundation is highly efficient, with a vast majority of all money raised going directly to research and care for those with CF.
Join us May 19th at Stinson Park for a celebration of life and hope. Together we can make CF stand for cure found!!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.