We are Madi's Minions, an army built to rally behind Madi so she can take over this crazy, beautiful world!
Madi was diagnosed at 10 days old with Cystic Fibrosis and our brutiful journey began! We call it brutiful (thanks to Glennon) because somedays on this journey have been brutial and some have been the most beautiful! Madi is so full of life and energy and there is not a day that she does not live it to the fullest! We have been BLESSED benyond measure to have Madi in our lives and striding to raise money to help find a cure for her and others battling CF is an Honor!
In January 2016, Madi turned 2 and this was a HUGE milestone for us as Madi recieved the groundbreaking drug Kalydeco! To say this drug has been a life changer for Madi is such an understatement! Madi can breathe easier, run faster, play longer, eat and sleep better all because of this little miracle drug called Kalydeco! Kalydeco is the closest thing we have right now to being a cure for Madi, and in our minds and hearts it has "cured" her. This drug however would not exist if it were not for the donations of amazing families and friends, fighting hard for their loved ones.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for Cystic Fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
We look forward to assembling the Minions for Madi!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.