My Great Strides Story
We introduce to you… Miss Raelynn!
Raelynn was born on June 16th, 2023. We brought home our brand new baby girl. Days later we received a life changing call. Rae was diagnosed with Cystic Fibrosis on her newborn screening. Our lives were turned upside down. Little did we know the next few months of our lives would be full of worry, doctors appointments, medications, and therapies.
Cystic Fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and while people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
Our Rae of sunshine has been incredibly lucky and has not had any major complications due to CF. However, there is currently no cure for Cystic Fibrosis. With this being said, every dollar, every walker, and anyone who simply supports our family helps spread the word about CF. The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but not everyone can benefit from them.
CF will someday stand for cure found.
Until then we will continue to fight for all members of the CF community and stride for a cure.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.