we are doing this walk in remembrance and honoring Ben Price II.
My husband Ben had CF and in June of 2017 he got a double lung transplant months before we met each other. Now CF never leaves their body after a transplant, and there is always the factor that the body can reject the lungs at any point. Ben was doing amazing and could finally breathe, also even got to have a "normal" life. CF has been a big part of my life since the day we met and appecting every little part of being a spouse of a CF Worrior.
May of 2019 was the first time I did this walk, sadly Ben was not able to join us since he had been in the hospital the week before. He wanted his team to be something with deadpool, so he picked "Ben's CF Deadpool Crew!" he was all excited to do the walk for years to come. We got married in June of 2019, but sadly in August of 2019 his body started to reject his lungs and this chronic rejection was unknow of how it would be and how much time he would have to do anything. So we started looking into getting treatment and a second double lung transplant but it didnt happen, this chronic rejection was fast acting. On Nov 27th 2019 this sweet loving man took his last and final breath with Me next to him and also both his father and mother there. He always had the saying "NEVER GIVE UP" and he fought till the end.
Ben loved Deadpool and I love Harley Quinn, it was our thing. He was so Proud to show off his deadpool clothes and even in the hospital he would wear his deadpool and decorate his room with the tape he took from the nurses that they had to use to tape off a box on the floor.
Ben and I talked about what he wanted after his passing and doing this walk and helping others with CF was something he liked because it was a big part of his life and mine. Please join me in this walk to support not only the remembrance of Ben but to help everyone fighting CF and someday that they can find a cure.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let's make CF stand for Cure Found!
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