Dear Family and Friends,
Hi! It's May and time to start fundraising for the Cystic Fibrosis Great Strides walk to raise money to cure Cystic Fibrosis. Sorry we are a little late to the game this year. The walk is May 20. Your support has been so special to us in the past and we hope that you consider donating again this year.
Update on Ellie - she continues to do so well! She’s now finishing up her junior year at Marian and loving it (mostly). She's involved in Journalism and has even won a few awards this year and chosen to be one of the copy editors for their recent newspaper edition! Trikafta, the newest medication designed to address the underlying genetic defect in CF, continues to be part of her regular medication regimen. We are excited to say that because she's been doing so well, the doctor is letting her take a break from her nebulized medication (Pulmozyme) to see how she does. We are hopeful that because of this medication she can start reducing some of her treatments (fingers crossed). This seriously just demonstrates the remarkable work the CFF Foundation does in using your donations to improve lives and work toward a cure for CF!
We hope you can make a donation by clicking on this link:
Every bit helps. Unfortunately, Ellie works on the 20th so we won't make it to the walk. It keeps getting harder to get there since she's so busy these days!
Thanks so much for all the support. Ellie and her fellow CF fighters appreciate it. God Bless!
Matt, Jennifer, Leo and Ellie