Dear Family and Friends,
Hello again after a few years off! It's time for Great Strides to cure cystic fibrosis on May 21st. We hope you'll be able to support our continuing fight! We are closer than ever to a cure and that is possible in no small part thanks to you.
Ellie is doing great! She’s a sophomore at Marian and loving it (mostly). She continues to take Trikafta, a medication that addresses the underlying cause of CF; it’s not perfect, and better meds are in the pipeline, but this is a huge step forward. Your donations not only helped develop these medicines; they’ve helped people access them, including us.
We hope you can make a donation by clicking on this link:
Every bit helps. We won’t be able to walk this year as Leo is graduating that day (and headed to Creighton) but we’ll be there in spirit!
Thanks so much for all the support. Ellie and her fellow CF fighters appreciate it. God Bless!
Matt, Jennifer, Leo and Ellie