It's that time of year again!! Team Super Connor is back at it again and we are ready to raise awareness and money to fight CF!
I am so happy to share with you that amazing progress is being made every day in the CF world. A new medication has been formulated to significantly help the health of 90% of the CF population. I have read so many personal testamonials from these CF warriors who can't believe how much this "wonder pill" is helping them. Some of them can take a full deep breath for the first time in years! Some of them have been able to be weaned off oxygen completely! This could not have been done without the love and support of everyone who has ventured into our little world, and I thank you so so much!
Update on Connor:
Well unfortunately for Connor, this new wonder pill is not something that is beneficial to him. The pill targets certain genetic mutations, and our unique little Connor has his own little set of unique mutations. He is proud to tell everyone that he is one of only 10 people in the whole world with his same mutations! So, his fight continues, and the CF Foundation has launched a new campaign to help the 10% that are not benefitted by this new drug.
Connor has had a bit of a rough year this past year. Both he and his brother could not escape the grisly clutches of influenza B and they were both sick with it over Christmas. This is most likely what led to Connor developing pneumonia for the first time, which he was diagnosed with in February and narrowly missed being admitted into the hospital.
If you are able to give amount at all, please consider doing so by clicking the "Donate to Allison" or "Join Allison's Team" links. If you are able to walk with us on May 16 at 10:30 at Stinson Park, please please come and show your support! I can't describe how much it means to me to be able to show Connor that people are willing to show up and support him year after year. As always, thank you thank you thank you to all of you who support us in all of the ways you do! And also as always, party at my place afterwards!!!