The month of May will always hold a special place in our hearts. In 2016, May brought us much joy as well as unexpected challenges. Wesley Jerome was born on May 6th; a little more than two weeks early. As we started to adjust to having two kids under two in the house, life threw us an unexpected curveball. Only one week after his birth we learned that Wesley could possibly have Cystic Fibrosis. Our hearts sunk when we learned of this possibility and every day we overwhelmed ourselves with information on symptoms from “Dr. Google”. A week later, our fears were confirmed through another test when the doctor told us he was positive for Cystic Fibrosis.
Cystic Fibrosis (CF) is a lifelong disease that affects the lungs and digestive system. Until CF impacted us directly, we did not know much about this illness. Since the diagnosis, we have been doing more research and learning whatever we can to help Wesley have the best life possible. We’re hoping that by sharing this information we can bring more awareness to CF so we can battle this disease not only for Wesley but for others. Please watch the Wesley's Warriors video for a glimpse into his daily regime and the superhero we admire each day!
The Cystic Fibrosis Foundation has been the driving force behind advancements in research and medical treatments for CF. The quality of life has been greatly enhanced because of this work and it will only get better. We have faith that through their efforts, a cure will be found. What this means for us and our family is that we will have a new normal as we continue to adjust to this new lifestyle and all we ask of you is your continued love, support, and prayers. Wesley will be a fighter. He will be strong. He will LIVE. Watch out world, his life is about to take flight.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.