Mikaela Rohner

My name is Mikaela, and I am a cystic fibrosis fighter! I was diagnosed with cystic fibrosis when I was 15 years old. Before that, while growing up I was persistently sick having pneumonia or bronchitis at least once a year. Once I was diagnosed with CF I started several new medications, got a feeding tube, and encountered my share of health problems.

I have had so many exacerbations throughout my lifetime - some bringing me to my lowest lows. In 2019, Trikafta was approved by the FDA and I was able to start this BRAND NEW life changing medication, which unfortunately is not a medication for every CF patient.

In April 2020 I found out that my husband and I were expecting our first child. Without Trikafta, I wouldn't have been able to have such a healthy pregnancy. I delivered my baby girl, naturally, something I I never believed would be posisble.

Since giving birth, I was able to breastfeed my daughter & maintain my weight & healthy lung function. 6 months after birth I was able to remove my feeding tube & continue to maintain my weight. In December I gained 5 pounds without the help of supplements which was a HUGE accomplishment for me.

In April 2023 I was able to have my port-a-catch removed since I have not used it in over 3 years. I now have no medical devices in my body to maintain my health which is a huge huge deal. 

We found out that we are expecting our second child in August 2024, and we are prepared for a child who has a 50% chance of having CF. 

I fight for myself. I fight for the future generations. AND - I fight for those that we lost too soon. 

Help me fight to end cystic fibrosis, UNTIL ITS DONE.