Hi! My name is Kaylin Bendon and I'm 13 years old. When I was born, I was diagnosed with Cystic Fibrosis. This is a genetic disease that causes mucus to gather in your airways and inside your lungs. This disease can also affect your digestive tract and your liver. Some of the symptoms include loss of salt, lots of coughing, poor growth, and lung infections. I don't experience all of these symptoms, I am one of the luckier people in the Cystic Fibrosis world.
There is not a cure for Cystic Fibrosis, but with medications, other physical treatments, and lots of acitivity I am able to maintain my health. Every day after school I have to do my treatments. I would much rather be talking to my friends on the phone or playing outside, but my health needs to be my first priority.
As far as activities go, I enjoy playing volleyball and it always keeps me moving, which is very beneficial to my health. As the summer gets closer, I am trying to do more activities outside. I have been running every day and practicing volleyball. It has been hard this year with the Covid19 restrictions.
As I said, there is not cure for Cystic Fibrosis, but with people like you, we can discover more medications and help people with CF liver longer. I will be participating virtually in the Great Strides walk this year. Please consider donating money to help people like me. Thank you in advance for donating to help find the cure!