Devina Griffith

My Great Strides Story

The end of 2020, our second daughter was born and diagnosed with cystic fibrosis. Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. She has had a lot of challenges to overcome, but is currently thriving as she recently started the medication Trikafta, one of the best medications on the market for people with cystic fibrosis.

Within the last year, through genetic testing it was confirmed that myself, as well as, our older daughter also mutations resulting in mild symptoms. 

This year, we are fighting for better medications and a cure. As well as for research, education and advocacy efforts for those that do not "fit" into the typical diagnosis, but their symptoms need attention and better understanding of the uniqueness of this disease.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.