Dear Family and Friends,
Hi! We are a little behind this year to get things going for Fundraising for Great Strides as we have been celebrating Ellie's high school graduation! Lucky for us The CF Foundation moved our Omaha walk to June 1 instead of early May! Your support has been so special to us in the past and we hope that you consider donating again this year.
Update on Ellie - she is now 18, a high school graduate, preparing to start college at Saint Louis University in the fall, and continues to do so well! She is staying healthy on Trikafta, the newest medication designed to address the underlying genetic defect in CF. And, much to her delight, we are starting to see that she is being allowed to start decreasing some of her other medications and treatments! This seriously just demonstrates the remarkable work the CFF Foundation does in using your donations to improve lives and work toward a cure for CF!
We hope you can make a donation by clicking on this link:
https://fightcf.cff.org/site/TR/GreatStrides/84_Nebraska_Omaha?team_id=105267&pg=team&fr_id=9114
We will be at the walk this year so please join us. Sounds like Ellie is going to have a bunch of her wonderful friends with us this year and would love to have you all join the fun!
Thanks so much for all the support. Ellie and her fellow CF fighters appreciate it. God Bless!
Matt, Jennifer, Leo and Ellie
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.