Tammy Jensen

My Great Strides Story

I am asking for donations for Cystic Fibrosis Foundation.  May is Cystic Fibrosis Awareness month.  My grandson Jason Wolfgang, who was born in 2018 and was diagnosed with Cystic Fibrosis, is now a thriving five year old who will tell you he’s Ruby’s brother before he’ll tell you he has Cystic Fibrosis. He is my baking budding (he loves to crack eggs and is really good at it, he helps me sew, especially if it is an animal for him and he loves to do projects and experiments.   In 2019 he started his journey with the CFTR modulator, Kalydeco. CFTR Modulators are “drugs that target the underlying defect in the cystic fibrosis transmembrane conductance regulator (CFTR) protein”. (CFF, CFTR modulator types 2022) Now there are four CFTR Modulators, the biggest one that reached even more individuals living with Cystic Fibrosis is Trikafta.

Jason might not have Kalydeco and many people living with CF who weren’t eligible for the three existing CFTR modulators wouldn’t have Trikafta if it wasn’t for the Cystic Fibrosis Foundation. The Cystic Fibrosis Foundation is the world's leader in the fight against CF. The Foundation intends to allocate a half billion dollars through 2025 to an ambitious research initiative to accelerate treatments for everyone with CF and ultimately deliver a cure.

So thank you. Any amount of money will help find a cure and help my grandson Jason have a long life. 

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.