I'm walking in support of my incredible niece, Emma.
We found out that Emma has CF before she was born. I'm thankful that we knew so early on so that she could start treatment as soon as possible. Now she is about to turn one and we are all in awe of how tough she is and how tough her parents, Hallye and Charlie, are. (Every day, she spends 1-2 hours on breathing treatments and chest percussions, and she takes enzymes throughout the day to help her tummy digest her food.) My hope is that the CF foundation will continue to improve treatment options and find new ones for Emma and everyone else affected by the disease as they continue to search for a cure.
About Cystic Fibrosis
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.