L Johnson

My Great Strides Story

As most of you know for years our family along with friends held local events to raise money for the CF Foundation.  Great Strides, Family Fun Events at the Columbia Water Park, Letter Campaigns and lastly Catfish For A Cure that was held at Kanes.  With May being CF Awareness month, I was led to spread awareness and hopefully raised some money.  

As you know Brycen was diagnosed with CF when he was 13 weeks old.  He will be 25 this year!!  God is Good.  He is married, works full time, is a volunteer Fire Fighter and lives life to the fullest. He and his wife Anna Claire have a little farm with chickens, ducks along with their 2 dogs Zeus and Diesel. 

For some that may not know Cystic fibrosis affects the lungs, pancreas, and other organs. It is a genetic disease.  The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.  Brycen has been blessed and has not had complications in several years and we give God praise for this. 

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them, but Brycen was a candidate for a new drug that was approved in 2019 and has done extremely well with it.  

Money raised will be used to continue the research needed.  Research for new and better treatments and one day that cure.  

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.