There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Let me explain to you what CF is to our family... It is an INCURABLE TERMINAL disease that is a genetic mutation that causes the body to produce extra thick sticky mucous. This mucous builds up in ALL the persons body organs. Its not just a lung disease. As most of you know (but some don't), I have two boys with this disease. Benjamin is 5, about to be 6, and he has had multiple dangerous lung infections through the years that have caused multiple long hospital stays. He also continues to struggle to keep his weight up. He takes multiple medicines to help with this and to help his pancreas absorb the nutrients from his food. Josiah is 9 months old. When he was born he had a blockage in his bowels that had to be surgically removed. He was in the NICU at Le Bonheur for 2 months. He also had complications with his liver not functioning correctly after the surgeries and takes a medicine to make sure it does what it is suppose to. The doctors have told us that it is very possible in the future he will need a liver transplant. Of course I believe God controls this. Josiah's lung function shows that he has mild-moderate lung disease, and he's 9 months old. How does all this affect us? Well on a daily basis Ben takes up 16 pills a day to help him get the nutrients he needs from food. Josiah takes up to 30 pills to help him receive the nutrients he needs to grow. Ben also takes a medicine to help him have an appetite. He does breathing treatments and therapies twice a day when he has no cough. When he develops a cough he does this 4 times a day. Josiah does this as well. These treatments last around 25 to 45 minutes each time. Ben also takes 3 medicines to help keep his sinuses clear. One of those includes an antibiotic 3 times a week. He also takes two other medicines to help keep his tummy happy and aid in absorbing nutrients. Both boys also take a multivitamin that is supped up in extra vitamins, it is not sold over the counter and insurance does not pay for it.
Also Cody's brother, Alan, has this terrible disease. He goes through all of these things as well. Alan takes the same medicines that Benjamin takes. In addition to those medicines, he also takes a medicine that reduces the symptoms of CF. This medicine costs way too much each month. He does all of this while trying to live a normal life as a young adult. Alan has a very anointed singing voice and lives his life for God. He spent one year singing on Voices of Lee at Lee University. However, his health declined some due to all of the traveling and had to step back from enjoying the experience.
I say all this to describe why we raise money for the CF foundation. WE NEED A CURE FOR THIS DISEASE! Please support Benjamin, Alan, and Josiah in their fight against Cystic Fibrosis!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.