My Great Strides Story
We have purposefully tried not to post about Emma having CF because it is important to us that we don’t let this disease define her. I think Charlie and I (and our family and friends) have done a great job of making sure that she lives a normal life where CF is not her identity, while also keeping up with all of her daily treatments and meds. We are extremely thankful for all of the support we get daily. Our girl is so happy and so loved and we are proud beyond words. However, I am going to make an exception post once a year where I ask for even more support. Emma is going to be participating in her first Great Strides walk this year, along with lots of her family, to raise money for the Cystic Fibrosis Foundation. We are asking anyone who is interested to register for the walk or to donate to the CF Foundation in Emma’s name to help us find a cure. We are optimistic about the future and truly believe that a cure could be found in Emma’s lifetime. Thank you to everyone for loving our girl so well
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.