Our team name is Raising for Rory. No, None if the donations raised go to Rory herself. So why Raising for Rory? Because in honor of Rory we are raising awareness of what Cystic Fibrosis is. We are raising donations to fund research and assistance for those with Cystic Fibrosis. And we are, of course, raising Rory! Although I am here actually raising her, I frequently get advice or see helpful information for raising a child with CF from fellow CF parents, groups, doctors, nurses and of course support from my friends and family! It takes a village to raise a child I once heard.
There were some amazing things that happened for the CF community recently and I can't wait to see what is to come this year. And this is where I ask for your help! I would love if you all could take a minute to sign up to walk with us, make a donation when/if you can, and share the event!!
The Cystic Fibrosis Foundation is NOT government funded. Research runs solely off donations. Our goal is to educate and raise awareness for Cystic Fibrosis, and hopefully with it donations to help find a cure. Josh and I, like so many other parents had no idea what it was or that we were even carriers. So many things to learn and information to pass on! Along with raising awareness we would also like to raise donations. New research costs money but it is so worth it! Reading about all the medications and treatments in store for people with cystic fibrosis is awesome. Someday they will all live normal lives and not have to worry about this disease!
Join our team and help add tomorrows! Donations made go straight to the foundation, just in honor of little miss Rory. Follow Raising for Rory on facebook to see how she is doing. Cystic Fibrosis events will also be shared on this page, as well as fundraisers and updates the foundation shares and awesome stories about others living with Cystic Fibrosis!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us?
By making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Be sure to follow the facebook page to get updates on the yearly walks! They are so much fun and such a great cause! Very family oriented!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.